Thursday, April 13, 2017
I have shared many disorders on my blog before and some you may have heard of and others not so much. Since my career line off of the great blog is in the medical field I think it is my job to help you understand what is out there as well. Today I want to share with you one that you may not have been aware of. The Functional neurological symptom Disorder or FNsD. This disorder affects individuals neurological system with weakness, movement disorders, sensory symptoms and blackouts. The brain of a patient with functional neurological symptom disorder is structurally normal but functions incorrectly. While others have suffered in silence there is a new group that helps draw those who suffer together.
Those suffering with functional neurological disorder or FND was given hope on April 30, 2012 when the group FND Hope was established. The non profit advocacy organization was set up for those with medically unexplained symptoms. The website fndhope.org was created by patients, caregivers, doctors and researchers who were brought together for one goal. The goal was to promote better treatment and care for FND patients.
The purpose of this group was to and is to advocate for the men, women and children who have had their lives turned on end by what they are experiencing. The physical and often debilitating functional symptoms are tough to deal with alone. The FND Hope group can offer current information and dispel biased stereotypes and ill conceived myths.
The 13th of April was the date the website went live. Since that time over 40 countries have joined the cause and many national publications have been shared as well. Where conversation begins a path can be found and now that there are thousands of people talking over the multiple support group forums the light can be seen.